Fibromyalgia: A Poem

I wanted to share this fibromyalgia poem I found. I did not write it and I’m unsure of the author, so I am not taking credit for it!

If you live with the pain, fatigue, stiffness, insomnia and everything in between from fibromyalgia, I’m sure you can resonate with all or most of the details within this poem. You may want to try sharing this poem with your family and friends, so that maybe they can begin to understand you better.

It can be a long, winding, lonely road with fibromyalgia, but it doesn’t have to be. I’m here to support you each step of the way…

A fibromyalgia poem:

Hi, my name is fibromyalgia, and I’m an invisible chronic illness. 

I am now velcro’d to you for life. 

Others around you can’t see me or hear me, but your body feels me.

I can attack you anywhere and anyhow I please. 

I can cause severe pain, or, if I’m in a good mood, I can just cause you to ache all over.

Remember when you and energy ran around together and had fun? 

I took energy from you, and gave you exhaustion.

Try to have fun now!

I also took good sleep from you, and in turn, gave you brain fog. 

I can make you tremble internally or make you feel cold or hot when everyone else feels normal. 

Oh yeah, I can make you feel anxious and depressed, too. 

You didn’t ask for me. I chose you for various reasons:

That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I’m here to stay!

I hear you’re going to see a doctor who can get rid of me. I’m rolling on the floor laughing. 

Just try. 

You will have to go to many, many doctors until you find one who can help you effectively. 

You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENS unit, get massaged, told if you just sleep and exercise properly it will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day. 

Your family and friends will listen to you until they just get tired of hearing about how I make you feel, and that I’m a debilitating disease. 

Some of them will say things like “Oh, you are just having a bad day” or “well, remember you can’t do the things you used to do 20 years ago”, 

Not hearing that you said 20 days ago.

Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation, with a “normal” person, and can’t remember what you were going to say next!

In closing, the only place you will get any support and understanding in dealing with me is other people with fibromyalgia. 

This poem was written by Terri B. She contacted me when she found my post.

…..

I am sending you so much hope. Trust me, I have been there, done that, writing the book on it. But here’s the thing…

You CAN get your life back. You can reduce your pain, fatigue, stiffness, insomnia, and everything in between. You can reduce the number of flare ups you experience, and when they come on, the length and severity. You can learn to manage your energy wisely. You can be the mom you want to be. You can be the business owner or employee you strive to become. You can be everything you want to be!

How can this be done? Through simple diet and lifestyle changes! I work 1:1 with fibromyalgia clients to naturally reduce your symptoms, because trust me, after 25 years living with this illness, it is possible, and I am living proof.

Cheers to living your best life with fibro!

xo,

The Nutritionist Mama

*Disclaimer - this is my own personal experience and not medical advice.